I had a Bentall with mechanical valve done in Feb 2017. She learned she needed an aortic valve replacement in 2009 and underwent open heart surgery, receiving a mechanical valve to replace her damaged aortic valve. The actress, 44, found out she had a leaky valve in 2002. There is a readable section related to BAV. 3 In the most common type (type 1), there is a fusion line between the left and right coronary cusps, which extends a variable distance from the commissure (the point of attachment of the . My problem is with cardiologists stating do not lift anything over 50lbs. Also is it possible to never need surgery to replace the valve and that the AR stays stable, or even goes away ? For patients with bioprosthetic valves after heart valve surgery, the valve itself is not usually affected by weight-lifting activities. My questions are Thank you very much for the answer! Great article! I first wrote about BAV in a short post here at the blog back in 2009. It makes the heart work harder than it should. Enjoy! I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. There was only a 0.2 cm increase in the previous 7 years (so from age 21 to 28). The procedure was performed at the Cleveland Clinic. I then played football my last two years of high school as well as playing hockey and throwing shot put for the track team. looking forward for healthy life without surgery any possibilities??? Well, as it happens, the Cleveland Clinic has been recently rated the top heart hospital in the nation, and the number two hospital overall. The fusion (sticking together) of the valve leaflets causes abnormal valve opening and closing. We were to see them in 3 months. Normal great vessel size Post 2 years and Ive yet to get back to my high level of racing fitness and wanted to see what should be expected. If Im trying to do 10 it will be harder to get those 2 up but it wasnt that hard before. Thanks for sharing your experience, Randy. At this time, it is not known whether Arnold received the new valve using a surgical aortic valve replacement (SAVR) or atranscatheter aortic valve replacement (TAVR). Notify me of follow-up comments by email. Ive recently joined the gym to get fit an toned up but I cant get a clear answer from the cardiologist of what weights I cant actually do at the gym. I would like to thank you very much for providing me with your thoughts. My AVG HR on a daily basis is between 61-64 (that includes a workout where it exceeds 150 at times), I have no intentions of racing this marathon, simply crossing the FINISH line, and my heart rate will not exceed 150 I will walk when/if necessary. Bicuspid aortic valve and coarctation: two villains part of a diffuse Just still unsure however if my bioprosthetic valve affects my cross country running times. I have been checked by echo/CT every year for the last 7 years to monitor the progress of my valve regergitation and aortic aneurism. And now my aortic root is 42 mm. I cant imagine life without activity, but Im not fool to risk my life, not any more anyway :). Thanks, In short, is it too early for me to start talking to a surgeon to identify available options? They are also predisposed to enlargement of the ascending aorta, the large blood vessel that carries blood flow away from the heart. To much info to much detail so much information and advice. Reply. Thank you for what you do and for your responsiveness. My son is 15 and has grown about 4-6 inches in the last year. My name became public 25 years ago this week. I would think that moderate would be a good term for 8-12 rep range, pullups (unassisted), and pushups. Benefits: long-term durability. Who Has BAV? - bicuspidfoundation.com I got Edwards magna perimount 25mm bovine AV and Valsava graft for aortic root replacement. I have 4 children and a great wife. November Cover Star Gal Gadot Is in a League of Her Own A First Look at Diana and Margaret Thatcher in The Crown Season Four Celebs Roast Trump in Rhyme for John Lithgows Trumpty Dumpty Book Brace Yourself for George Clooneys Apocalyptic Movie The Midnight Sky The Best Shows and Movies Streaming This October Inside Netflixs Latest Binge-able Escape, Emily in Paris The Crowns Young Stars on Prince Charles and Princess Di From the Archive: How Hollywood Sharks, Mafia Kingpins, and Cinematic Geniuses Shaped The Godfather Not a subscriber? So far, none of the people that had the operation suffered any dissection. Common symptoms include chest pain, shortness of breath, dizziness and fainting. There are 2 broad categories of heart valve substitutes that can be used to replace the human aortic valve: mechanical valves or bioprosthetic (tissue) valves. For athletes who return to sport after AVR and aortic replacement, its important to settle on whats safe with your doctor(s) ahead of time. I had AVR exactly 1 year ago to the date. celebrities including musicians, actors, TV personalities, politicians, entertainers, and sports figures, etc. I have been factual with him and told him worst case scenario is he is done with both and have pushed him to see the positives of exploring other things to do. Ive done the Philly a Marathon a coup,e times and know that its a terrific event. I have almost everyday all day shortness of breath which follows with chest pain and discomfort. Ive done so much research and there are lots of young people who have went on to play sports and lead normal lifes. Celebrities With Heart Disease - Celebrity Heart Health Survivors Ive yet to feel like Im back to my previous racing fitness that I once had. The ST junction and ascending aorta are mildly dilated max 35mm. There were some procedural differences between the bicuspid and tricuspid groups. Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. The issues related to repeat aortic valve surgery, with or without replacement of the aorta, are complicated. Call 911. "I have heart disease, and I found out about five or four years ago, the singer, now 49, told PEOPLE in 2008. Have you heard about the PEARS procedure? The free weights are about 10kg and Im not doing any really heavy weights. Replacement of the aortic valve with either a cryopreserved human homograft (the aortic valve from a human cadaver) or with the patients own pulmonary valve results in the least obstruction to blood flow. Its a lot harder in the UK to see your cardiologist so you cant get the answers quickly. I see my cardiologist the end of May. Unfortunately, I really cant point you to such studies. How much exercise is too much for someone with a functional BAV? Athletes with BAV who have no stenosis or regurgitation of the aortic valve AND have no enlargement of the nearby aorta may participate fully in their sports. I am an amateur runner, I do not participate in competitions. Athletes in this circumstance should collect opinions from their doctor(s) and make very careful considerations before returning to exercise. Perhaps that info will give you some basis for discussion with your cardiologist and surgeon regarding the type of valve that is used for your re-replacement. Lack of breath? My heart rate some time is 100. Thanks so much for all this info! Maybe a genewho knows. There is recent interest and experience with aortic valve repairinstead of replacementfor patients with BAV. Im afraid Ill end up like my Mom. My personal approach to endurance athletes in this situation would be to offer operation if the patient wanted to continue to participate in endurance sports (after operation) and was willing to assume the risks of operation. The tragic event's silver lining was that it caused Latifah, 46, and her mother, 67, to bond. Prevalence of Bicuspid Aortic Valve in Newborns I like to practice MTB and running competitively in local races. My aorta diameter is 4.0 cm and has increased by 0.8 cm (from 3.2 cm) in the past 5 years so the diameter is increasing rapidly. I think its reasonable to think of things this way. If I had to choose a valve for AVR, Id choose a tissue valve. "Heart disease is the number one killer of all Americans, the number one killer of African-Americans and the number one killer of women, so I shouldve been put on notice since Im three-for-three. Thank you to every doc and nurse on my team.". . I was also advised that it is really the static weight-lifting that could pose a problem. Hes a 30-year-old 8th grade science teacher, a cyclist and outdoorsman, who is chronicling his story with BAVfrom diagnosis, to evaluation, to preparations for upcoming valve replacement surgery. Questions about Bicuspid Aortic Valve!! Do you opration? This can be very frustrating to athletes who are used to being more active. September 13, 2017 1:00 PM. Thank you sincerely for your time and information. Last echo measurements LDid 6.3cm z-score 2.4, LVIDs 4.1 cm z-score 2.0, LVPWd 1.2cm z-score 1.9, asc aorta Diam 4.0 cm z-score 5.8. Went through the process of antibiotic therapy and. these conditions occur mostly during my exercises at the gym and Im left very lightheaded and shortness of breathe. Will I need meds? He had a mild BAV and was told that he can play with no restriction. These are the data I got in my last MTB race. And slow enlargement of the aorta is common for patients with BAV. If labeling my fitness level I wouldnt use the term athlete, but I used to work out pretty vigorously 5 days a week until about 8 months ago (weights, medium endurance cardio, no longer distance running than 5 miles, interspersed with HIIT). Any advice would be greatly appreciated. Left Ventricular Mass (LV mass/BSA 93g/m2| 114 g/m2, Septal thickness 0.93 cm|1.0-1.1 cm, Posterior wall thickness 0.93 cm|1.0 cm). A bicuspid aortic valve (BAV) is the most common congenital heart defect, occurring in approximately 1%-2% of the general population. I am playing basketball I am doing 100m and 200m and swimming . Defects can involve the walls or valves of the heart, or they may affect the arteries and veins near the heart. I'm new to this group, so I'll be rather short. Thank you so much! If youre uncertain about any advice youve received about exercise, you might try to seek a second opinion that may provide some extra confidence about exercise. The abnormal anatomy of the bicuspid aortic valve is complex, and a classification schema of 3 anatomical types has been proposed by Sievers and Schmidtke. I certainly know of athletes who return to all forms of endurance sport as well as weight-lifting after operations like yours. Since then I completed several 10k races and one half-marathon. However, this is not always the case. Mick Jagger's Broken Heart | MedPage Today Im 39 also diagnosed with BAV when I was 31. The mechanical valve conduit replaces the valve with a mechanical valve and the aorta with a Dacron fabric tube. At issue are the potential long-term effects of repeated episodes of high heart rate and high blood pressure that accompany intense exercise. Although we still dont have very long term results tracked (15+ years), in the short term the results seem to be much superior to regular bentall de bono option (and its variations). How much worse does it have to get before it should be replaced? Copyright 2021-2022 Baldwin Publishing, Inc.All rights reserved. Aortic Valve Regurgitation | 8 Causes, Does It Worsen, & Prognosis Sometimes patients with mechanical aortic valves report that they lose a bit of their top-end athletic performance. For me, its about gender equality. For many patients, I recommend no heavy lifting (>10 pounds) for the first month after conventional heart surgery. Bicuspid aortic valve (having only two leaflets rather than the normal three) happens in about 1% to 2% of the population and is more common among men. I exercise, eat well and keep my weight down. I am also in grey zone waiting for surgery. The only question I have is in regards to having my children screened. Bicuspid Aortic Valve and Congenital Aortic Stenosis in Children We live at 6,500 ft (elevation) so Im not sure if its affecting my blood pressure when doing normal things. Doc says no problem, but that seems to be contrary to what I see here. So unfortunately it sounds like i am part of that grey area. Prescriptions for safe exercise will need to be carefully tailored to your particulars. no symptoms yet please help. The doctor allows me to do moderate sport defined by her like not 20k each day; 20k per week should be fine. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. Thoracic aortic aneurysm, an abnormal bulge in the part of the aorta located in the . The bicuspid aortic valve opens and closes abnormally, and can result in leaking of the valve. There are four valves of the heart, which are divided into two categories: Atrioventricular valves: The tricuspid valve and mitral (bicuspid) valve. Dr Creswell, Perhaps meeting with a heart surgeon now, even if operation is not yet needed, might provide a forum for discussion about the options for surgery, the technical issues, and recovery. Like I said, peoples experiences are all different. The notion is to reduce the number of cycles of heart beat x high blood pressure. 2) According to your explanation I rather not do cycling sports, but can I have low intensity sport like cycling or swimming twice a week for 90 minutes each, or 3 times for 60 minutes? And of course the problem occurs in everyday, recreational athletes, too. Frequency of congenitally bicuspid aortic valves in patients 80 years of age undergoing aortic valve replacement for aortic stenosis (with or without aortic regurgitation) and implications for transcatheter aortic valve implantation.Am J Cardiol. Most patients spend about a week in the hospital after operation and then are able to go home. I had it replaced in 2014 and am now 16. I wonder if there is also a psychological factor involved. Nwankwo Kanu (@papilokanu), the Olympic Gold Medalist (Soccer) suffered from Aortic Valve Defect. Bicuspid aortic valve - Wikipedia Bicuspid Aortic Valve and Bicuspid Aortopathy Nomenclature and My cardiologist has advised me to avoid high impact activities such as weight lifting and endurance training. Because it was just a cardiologist, not a sports cardiologist or physiotherapist. I used to be very muscular prior surgery and 3 mounts ago I started with 5 km runs, push ups and pull ups 3 days a week, slowly progressing. The aortic valve prevents blood from flowing back into the left ventricle of the heart. Thanks for sharing an update. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. He posed next to statues of Thomas Jefferson, Jesse Owens (whose family moved to Cleveland when he was nine, and who later attended The Ohio State University), and Abraham Lincoln. Bicuspid aortic valve is a type of abnormality of the aortic valve. Unfortunatly that`s pretty much all the advice i`ve been given so far, so little out there on what i can actively do and what i can`t. I suspect it had been leaking for a long time, as I felt no different; however, my recovery from long runs took longer than in the past (old age?). The congenital bicuspid aortic valve (BAV) condition is a valvulo-aortopathy with substantial heterogeneity in its clinical expressions, associated disorders, complications, and prognosis. In practice, the indications for aortic valve replacement for severe aortic stenosis or severe aortic regurgitation are straightforward and uncontroversial. In addition to this public search, we scanned our proprietary research database of over 1 million sources and were unable to find any specific research reports that address your goals. Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. Thanks for sharing your sons story. No pulmonary hypertension Im 32 years old and didnt expect at all that my aorta would dilate. Bicuspid Aortic Valve: Diagnosis, Treatment, and Outlook - Healthline Advice in this area must be individualized with your doctor(s). This award-winning website has helped over 10 million people fight heart valve disease. But like a lot of women, I thought that heart disease was an old white guys disease," the former talk show, 56, host tells PEOPLE. Elite triathletes and heart problems We go back in 3 months for another echo. I think you understand the guidelines correctly. Holding breath during lifts valsalva). We just dont know. 27yr old male. We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. Its probably not possible to have too much information as you think about your situation. If 5% of them dissect, this means 313,914 people. Bicuspid Aortic Valve - Medscape 2. In fact, like most people, the 25-year-old had never heard the term before. Advertisement. Pop Medicine > Celebrity Diagnosis . For some reason I did not receive a notification of your reply, so apologies that I havent thanked you before. I cant think like a nurse where hey is concerned. Bicuspid aortic valve is a common congenital anomaly but does not cause functional problems unless aortic valve stenosis, aortic valve regurgitation, aortic root dilatation, or dissection or infective endocarditis occurs. Ive been told by my cardiologist that they think I should probably avoid competitive rowing and weight lifting. Would this constitute as too much in your opinion ? Bicuspid Aortic Valve Stenosis: Causes, Symptoms & Treatment - Healthgrades Young Patient Feeling 'Supercharged' After Bicuspid Aortic Valve Surgery His cardiologist said he cant play. Last week, the CBS This Morning anchor announced via his co-anchors Gayle King and Norah ODonnell that he would be taking a break from the show to undergo heart surgery. The reason I ask is my Cardiologist said it looked fine in the echo imaging, but (and correct me if Im wrong please) I got the impression from what you said in this article that a CT or MRI is necessary for aortic diameter measurement. However, many people will develop complications from their BAV and may need surgery in their lifetimeeither to repair or replace the aortic valve, the thoracic aorta or both. Considering the results of my stress test and TOE, do you think it could be my heart and should I seek 2nd opinion. Up until this time shes played volleyball, basketball and has even run track in elementary. In 2006, Adam founded HeartValveSurgery.com to educate and empower patients. This has caused a Thoracic aortic aneurysm that is 4.3 cm. My daughter has played two years of varsity basketball already. However, there are few reports about the safety and efficacy of TAVI in type 0 BAV. So you know, this is not uncommon for heart valve surgery patients. While it was anticipated that a minimally invasive, transcather device would be used during the procedure, a surgical valve was ultimately used during an open-heart procedure using a median sternotomy. I dont doubt there is variability in recovery among athletes who have operation for AVR and aortic replacement. Women are 50 percent more likely to be given a wrong diagnosis after a heart attack and are at a greater risk of dying within a year of a heart attack than men. I agree that your doctor(s) are in the best position to offer advice regarding safe exercise based upon your particular circumstances. I have some issues with a dull pain right below my left breast that seems to come more often with a poor dietbut just doesnt seem like it could me esophagus related? (bicuspid aortic valve), singer Bret Michaels (atrial septal defect), and even 'Survivor' contestant Whitney Duncan (ASD). Bicuspid aortic valve: A bicuspid aortic valve only has two leaflets, increasing the risk of circulatory problems and heart conditions. We are now seeing moderate stenosis, hence replacement in the not too far distant future. Seems unlikely to me that there would be lingering effects that would make an EKG or chest x-ray abnormal. From afar, I dont have much to add. I am 18 years old . But, while doing my cardio stress test they discovered that I have a Bicuspid Aortic Valve. Im not sure I have all the answers from afar. Anyway, talk to a surgeon who understands quality of life means. We briefly talked about the Ross procedure vs mechanical valve replacement. My son is 16 years old and his story is very similar to many I read on your blog. I have question about your opinion about aortic valve regurgitation (no BAV) Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. There is a risk of sudden death in individuals with BAV, probably related most to aortic stenosis or aortic dissection/rupture. triangle chokes, other blood chokes) could be putting pressure on my heart and cause my aorta diameter to increase? "I had been doing some work around the house working with a heavy ladder, he told PEOPLE of his activity in the days leading up to his heart attack. Stress echo revealed hypercontractile with normal response in all LV segments, no LV cavitary dialiation. My Dr is almost certain that these symptoms are caused by issues that are not cardiac related, and that with at the stage my BAVD is at, it would not produce symptoms. It is unclear however if there are cardio thoracic surgeons who perform minimally evasive repairs yet. At 4.0 cm, its important to be thoughtful about activities. This procedure has the particular benefit that no artificial valve (with the disadvantages described above) needs to be used. Their experiences have been variable, and perhaps for a variety of reasons. Bicuspid aortic valve (BAV) disease does not usually cause symptoms. He sees his cardiologist every year. Really helpful. E. G. I could bench 50lbs with no need to strain and hold my breath, which wouldnt result in a massive spike in blood pressure, but if I tried to bicep curl 50lbs it would do. Aortic valve stenosis: Your aortic valve narrows, reducing blood flow through it. 2 Such features need to be considered before surgical intervention. The rest of the aorta is normal (visualized to just above the bifurcation in the abdomen). He is very athletic. Can you please shed some light on this is the sport performance supposed to gradually diminish (seems to go to zero for me) before the operation is needed? Me, i`m nearly 43, male and have BAV. Mayo Clinic Q and A: Treatment and management of bicuspid aortic valve Should I be doing push-ups/pull-ups? Hey is almost looking forward to getting it fixed. since the last worsening ten years ago, the situation still stable and each year I went to the doctor to have the tests, they still tell me nothing has been changed since. I am a cycling Masters racer (Cat 2) for last 25 years . On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Dr. Larry Creswell on athletes and heart health. Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). ( I was much worse though). It would be great to know what happens to groups of patients after AVR and aortic replacement that have returned to their various sports. 100 Black-Owned . This year (her junior year) her Cardio doc is saying that she cant in good conscious clear her for basketball (the sport my daughter LOVES). Like you mention, one theory is related to the aortic blood flow. The valve may also become stiff due to calcium deposits on the leaflets over time. I was disappointed [when I was diagnosed]. The guidelines were developed by an expert panel based on the scientific information available at that time: The issue has not been studied very well, but one recent study suggests that continued participation in sports for periods of up to 5 years does not change the natural history and progression of BAV. The Ross procedure borrows your sons pulmonary valve and uses it to replace his aortic valve and aorta. Also twice a week I try to do 40-minute workouts like planks, pushups and so on (with my bodyweight). I know it can be frustrating when you get conflicting opinions regarding the safety of exercise. Thank you for your assistance in this matter. Schwarzenegger's Aortic Valve Replacement | MedPage Today Follow up for development of these functional lesions is indicated. Barb. It seems to be a very interesting option for those who have aortic dilatation due to Marfan or BAV (which is my case). Obviously, mild to moderate would be somewhere in between. my age is 20 right now Youve got the right idea, though. All Rights Reserved. Heart disease and stroke are the number one killers of women, Streisand, 74, told PEOPLE about why she helped found the organization. What should I do ? Having a congenital heart defect means you are born with a problem with the heart's structure. This is thought to occur at a rate of about 0.1% per year in adults. If you wont we can share experiences about healing and progress, its pretty much same situation. As I restart my resistance (weight training) program what should be my upper limit weights? 1. And my wife is screaming at me every time I try to exercise :)). Bicuspid Aortic Valves, Arnold Schwarzenegger, Aneurysms, and Me Or usually lead a normal life? Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. 2023 Baton Rouge Clinic. Instead, even with continued sports participation, the progression of both valvular and aortic disease is no different from that in the general population. I dont know all of the important details. My son at 11 months was diagnosed with BAV. The only prudent course is to have periodic follow-up imaging to keep track of size/growth. He loves sports and is wanting to do more and more. Search Hospitals, Join 375,000+ Patientsat Our Facebook Page Click here, HeartValveSurgery.com 2785 Pacific Coast Hwy, #517 Torrance, CA 90505 Phone: (888) 725-4311, 2023 HeartValveSurgery.com. Aortic Stenosis CT or MRI may be more accurate. Yes, there are certainly patients with BAV who never need operation. I cant thank you enough for your responses to all the above questions. I am now down to seeing my doctors every 3 years or so and have been doing very well. It will also be necessary to keep a close eye on the size of the aorta over time, using echocardiography and CT. And, of course, its important to monitor over time the function of the prosthetic aortic valve and the size of the aorta.
Penalties For Crossing Borders Illegally, Articles C